Thinking About Going Away For College? Tips From Karen

Karen, Brooklyn, NY

I interviewed Karen about her experiences navigating college and dorm life. She attends Stony Brook University. Karen majors in Technological Systems with a concentration in Computer Science. She is from Brooklyn, NY and was diagnosed with Spastic Cerebral Palsy.

What factors did you consider in deciding where to go to college and what are some things

other people with CP should think about?

Some factors that I considered when I choose where to go for college are accessibility,

disability support, academic program, and location. I looked at whether the campus had

accessible buildings, elevators, ramps, and transportation options that would allow me to move

around independently. Another important factor was what kind of disability support services the

school offered. I cared about whether the college had a dedicated accessibility office, how easy it

was to request accommodations, and how supportive the staff seemed. Academic programs and

diversity also mattered to me. I wanted a school that is related to my interests and career goals

while still being flexible and supportive and a campus where I’m able to meet people from

various backgrounds. Location and independence were also factors. I thought about how far the

school was from home, access to medical care, and whether I would be able to manage daily life

on campus. Feeling safe and supported while also gaining independence was very important to

me. Factors that I would strongly encourage others to consider while choosing a college are

accessibility, disability services, and campus support beyond academics. Visiting the campus if

possible, asking specific questions about accommodations, and talking to the disability office are

something that I would encourage you to do. It is also important to think about your own needs,

strengths, and comfort level since it may vary among different people.

What have been some of the greatest challenges and successes of going away to college with

CP?

One of the greatest challenges I would say is that you have to start to learn to do and

manage stuff all by yourself. Tasks that might seem small such as daily life activities, navigating

a large campus, getting to classes on time, or managing long days can take up my energy and feel

tired. Learning how to pace myself and manage my time has been essential. Another challenge

has been accessibility. Even though colleges work to meet ADA standards, some old buildings,

classrooms, or pathways can still be difficult to navigate. For example, not all buildings have

automatic doors or it's not always functioning. However, going away to college has brought

many successes. One of the biggest achievements has been that I become more independent and

self-confident. Another success is that I can get more involved in the community and build up

my connections. As an example, my school offers many clubs and organizations, which has

allowed me to participate, meet new people, and seek leadership opportunities.

What has been your favorite part of the college of experience so far?

My favorite part of the college experience so far has been the independence that I have

gained, making new friends, and opportunities to get involved. College has given me the chance

to make my own decisions, manage my time, and take responsibility for my daily life, which has

helped me grow. Being in a new environment pushed me outside of my comfort zone and I learned

how to advocate for myself. Another part I enjoy is being involved in campus organizations and

clubs. Joining clubs, like those focused on accessibility, inclusion and related to my academic

interest, has allowed me to meet people with similar interests and experiences. It feels much

different from high school where I was not able to get involved too often since I need to take the

school bus home everyday. College has given me the freedom to participate, connect, and fully

engage in campus life.

What advice do you have for someone with CP who is thinking about going away to

college?

My advice is to plan ahead and advocate for yourself if you are planning to go away for

school. Research campus accessibility and disability services early, and do not hesitate to ask

questions. From my experience, accommodations have helped me a lot not only academically,

but also in daily life, such as I live on campus so after I talked to the disability office they were

able to accommodate me with an accessible room and an accessible bathroom with shower chair,

grab bar, etc. I would also encourage you to get involved on campus. Joining clubs, support

groups, or organizations that fit your interest can help you build a strong community and feel

more connected.